Category Archives: experts

Lyme is an epidemic

It’s very upsetting to me that there seems to be little acknowledgement that there is a Lyme epidemic going on in the US.

Instead, in 2016, we hear about the few cases of Zika virus [update… Zika causes an autoimmune disease! http://scientificamerican.com/article/scientists-find-zika-increases-risk-of-rare-neurological-illness/%5D. And yes, this can and will continue to get worse too, but meanwhile there are millions of cases of Lyme each year. Many will get caught soon enough (typically within a month) to treat successfully with a single 20-or-so day round of antibiotics. But many won’t. Here in Massachusetts, I personally know probably 10 people who have had Lyme and treated OK, and another 3 who are having ongoing long-term effects and still under treatment.

Some other comments:

1. The IDSA (from 2006!) guidelines probably need updating.

2. It’s been my experience that most people who have gotten to the bottom of their Lyme has been a result of SELF DIAGNOSIS. Doctors for the most part are misdiagnosing Lyme, which is shameful.

3. I am assuming it’s a combination of 1) healthcare professionals (doctors, dentists) not knowing 2) concern for antibiotic overuse 3) insurance companies concerned about costly treatments for people with chronic lyme (or “post-lyme disease syndrome”)

4. There is also a huge explosion in autoimmune diseases in the last 20+ years. Many of these are difficult to diagnose vs Lyme. In many cases, a differential diagnosis is VERY difficult to make and you can find Pubmed articles discussing the fact that many cases of Lupus, Chronic Fatigue Syndrome, etc. are actually Lyme.

5. At some level, it doesn’t really matter — both Lyme AND autoimmune diseases are 1) not well understood, 2) no easy treatment, 3) underdiagnosed.

SEE:

“1,500,000 fresh infected Borrelia patients each year in Germany.”
http://www.huffingtonpost.com/c-m-rubin/the-global-search-for-edu_b_3839801.html
CDC increased the number of annual diagnoses by ten fold, from 30-thousand to 300-thousand. (and this is probably very low as well)
New front in the Lyme wars

http://www.newyorker.com/magazine/2013/08/26/whats-wrong-with-me
“The American Autoimmune Related Diseases Association (AARDA) estimates that as many as fifty million Americans suffer from autoimmunity, which makes it one of the most prevalent categories of disease, ahead of cancer. It is a leading cause of illness in young women. (Three-quarters of autoimmune patients are women.) “

Leave a comment

Filed under experts, health, Lyme disease and ticks

Sudbury Valley as the 21st century coffeehouse …

These recent articles make me think of Sudbury Valley School and I apologize if this has been written about before, but…

How Coffee[houses] Caused the Enlightenment — Steven Johnson
http://owenstrachan.com/2012/02/15/how-coffee-caused-the-enlightenment/

Social Networking in the 1600s
http://www.nytimes.com/2013/06/23/opinion/sunday/social-networking-in-the-1600s.html?partner=rss&emc=rss

===========================================
See also:
1. article: “Engineering Serendipity”
e.g. Yahoo wanting employees to work at the office so they can mingle around the watercooler
http://www.nytimes.com/2013/04/07/opinion/sunday/engineering-serendipity.html?_r=0

2. article: GROUPTHINK The brainstorming myth. BY JONAH LEHRER
“Building 20 [at MIT] … ranks as one of the most creative environments of all time, a space with an almost uncanny ability to extract the best from people. Among M.I.T. people, it was referred to as “the magical incubator.””
http://www.newyorker.com/reporting/2012/01/30/120130fa_fact_lehrer?currentPage=all
(See also the design of private offices and huge lunch tables at offices like Fog Creek Software)

3. The discussion of three levels of learning/interest: “curious probing” vs “entertainment style” vs “unstoppable mastery learning” from “Do People Learn from Courses?” in the book: The Sudbury Valley School Experience, pages 90-99

Chapter: “The loneliness of the Information-Age Learner” from book: “Reflections on the Sudbury School Concept” especially pages 221-225
–information-age exposure enabling ever-widening possibilities for discussions
–interests being pursued on 2 levels: “local” level (at school) and “world-class expertise” where students with a passion need to begin to connect with other experts in their narrow area of interest (as any one does…)

4. The discussion of the breakdown of communities where children can interact freely, with the benefit of the presence of capable adults — roughly around page 133 in the book “Reflection on the Sudbury School Concept” (1999)

1 Comment

Filed under common knowledge vs specialization / exposure vs expertise, experts, freedom, future, motivation, passion, Sudbury Schools and Sudbury Valley School, talent vs skill